It’s Not All About Us.

I got a C.S. Lewis quote via Twitter the other day,

God speaks into our conscience, but shouts in our pains: it is His megaphone to rouse a deaf world – CSLewis

Well, yesterday I was being shouted at, and in my pain, I didn’t want to listen.  But, I’ve been afforded many opportunities to reflect and regain perspective in the last 24 hours.  When we were first facing this battle, I continually said out loud to family and friends that there is someone else out there having a worse day than us.  I lost that perspective yesterday.

We have it good, so very good.  I am humbled by the out pouring of love and support.  I am reminded, when reading the stories of other kids out there in the world who are facing much more difficult battles, that in the grand scheme of things, this is really a relatively small hill in our journey on this world.

I realize it is easy to become self absorbed and run the risk of a pity party when you’re at home.  At the hospital, we were surrounded by families who were facing much greater challenges.  We made friends with patients and their families who won’t be coming home any time soon, who have uncertain futures, who face months and months of hospital isolation and treatment.  I lost perspective.

Gabriel continues to do well at home.  He’s adjusting to being at home and the routine.

Mornings start out with a flush of his Broviac.

This is an illustration of his Broviac, except he has a single lumen (port) rather than the dual port.

So, Tuesday through Sunday, we flush the port with a saline solution.

This is followed by a dose of heparine.

Monday’s we do blood draws, which is the draw followed by the daily flush.

Then after the morning routine we have our drug administration time, which includes a dose of the Prednisone, Zantac, Calcium and depending on the day either an antibiotic or a dose of vitamin D. The drug routine is repeated at night.

This is repeated daily for the time being.  But, we’re on the countdown for the Prednisone, which is awesome.

Today has been a good day.  Gabriel got out and shot his bow and arrow and his Red Ryder BB gun.  Life is good, no, it is awesome.

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